President and Founder, Patient Advocates for Cancer Research & Treatment (PACRT), Geneva, Switzerland
Karin Holm is president and founder of Patient Advocates for Cancer Research & Treatment (PACRT) in Geneva, which she established after experiencing breast cancer herself and previously being a care-giver for her mother who died from pancreatic cancer. The organization is an independent, non-profit, volunteer-run advocacy group which focuses on getting the patient perspective into all aspects of oncology research and clinical practice. PACRT's objective is to encourage informed cancer patient advocates and place them into decision-making roles on ethics committees, clinical research review boards, funding organizations, advisory groups, and policy-making bodies. In her professional life, Karin has worked for over 18 years in the area of public-private partnerships in global health in Geneva, with non-governmental organizations and the World Health Organization. For the past three years she coordinated multi-stakeholder collaboration at the Council for International Organizations of Medical Sciences (CIOMS) on pharmacovigilance topics, producing internationally appreciated guides on risk minimization for medicinal products, meta-analyses in drug safety, and new vaccine safety surveillance in resource-limited countries. Karin currently serves on Geneva's Commission cantonal d'éthique de la recherche, as the first patient representative in Switzerland to be appointed to an ethics committee/clinical research institutional review board. Karin earned an M.B.A. from the Tuck School at Dartmouth College in New Hampshire and a B.A. from Dickinson College in Pennsylvania.